Numerous Long Covid patient assocations and advocacy associations have been formed in response to the millions of Long Covid cases worldwide. Around half of Long Covid patients have a related condition called Myalgic Encephalomyelitis (ME/CFS). ME/CFS organisations have stepped up to support and advocate for Long Covid patients too.
US
ME Action USA
ME Action USA fights for mobilisation and awareness through storytelling for ME/CFS and Long Covid patients. They have a popular campaign #missingmillions.
Solve M.E.
Solve ME/CFS Initiative (Solve M.E.) is a non-profit serving as a catalyst for research into ME/CFS, Long Covid and other infection-associated chronic conditions and illnesses (IACCIs).
Patient Led Research Collaboration
X https://patientresearchcovid19.com/
Long Covid Alliance
Long Covid Alliance includes 1,500 Long COVID and associated conditions organizations and individuals from around the world across the advocacy, education, federal policy, and scientific research spaces.
RECOVER Covid
X https://recovercovid.org/
Europe
TBC
UK
ME Action UK
ME Action UK fights for mobilisation and awareness through storytelling for ME/CFS and Long Covid patients. They have a popular campaign #missingmillions.
Long Covid Support
Long Covid Support is a charity providing information, support and advocacy for Long Covid patients.
Long Covid Physio
Long Covid Physio is an international peer support, education and advocacy patient-led association of physiotherapists living with Long Covid.
Australia
Emerge Australia
Emerge Australia is the premier patient organisation in Australia. Their flagship program is their telehealth support available to patients from registered nurses and social workers. They also host support groups and conduct advocacy.
ME/CFS Australia
ME/CFS Australia is the peak body for ME/CFS patient led charities within Australia.
Bridges & Pathways
Bridges & Pathways seeks to improve research and services for patients with ME/CFS, Fibromyalgia (FM) and associated conditions. They are based in South Australia.
ME/CFS South Australia Inc
ME/CFS South Australia Inc provides services, education and adovcacy.
ME CFS and Lyme Association of WA
ME CFS and Lyme Association of WA provides services in support, awareness and advocacy as well as supporting research.
ME/CFS/FM Support Association QLD Inc.
ME/CFS/FM Support Association QLD Inc. raises awareness, has a support line and hosts support groups.
ME/CFS & FM Association NSW Inc.
ME/CFS & FM Association NSW Inc. works to raise awareness and improve the plight of people living with ME/CFS and Fibromyalgia (FM). They also promote local support groups.
Far North Coast ME CFS Association
Far North Coast ME CFS Association provides support, education and assistance to people with ME/CFS and associated conditions. They operate on the Far North Coast of NSW.
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